Five-year-old Delilah who has a genetic disorder, which has caused her to have epilepsy and left her unable to walk and talk, desperately needs a specialist buggy. Can you help?
Your generous gift will help us towards our £4,784 goal, helping to make a difference to Delilah's life.
Delilah was developing as expected until she was 18 months old, then she suddenly stopped talking, began to stare blankly and would cry uncontrollably. Her parents, Alexandra and Nathan, were then given the devastating news that she has Rett syndrome, a regressive condition which causes severe mental and physical disability.
Delilah’s mobility is fading, she can now only be on her feet for ten minutes before collapsing with exhaustion and then needs to sleep for around four hours. She can’t communicate, needs to be tube fed as she can no longer safely swallow, and she is losing the use of her hands. She also experiences numerous daily seizures, and her lungs keep going into spasm, which can stop her breathing for up to two minutes.
A specialist buggy to take Delilah outside is vital. Her Occupational Therapist said her current buggy was too small over a year ago, and advised their local wheelchair services that a different type was needed to properly support Delilah as her spine is curving.
The buggy the Allpress family have applied to Newlife for would provide all the postural support Delilah needs so she would be more comfortable and, as it reclines, she would be able to sleep peacefully. Her parents would also have easy access to her in an emergency and crucially it can easily accommodate all her medical equipment, including the bulky oxygen tank.
A new specialist buggy would make a huge difference to Delilah and her family, but this costs £4,784. Can you help Delilah so she's able to get the specialist buggy she needs?
Your generous gift will help us towards £4,784 goal, helping to keep him safe when outside.
Any donations received above the amount to fund Delilah's buggy will be used to fund other equipment grants across the UK.
It is estimated that it costs three times the amount of money necessary to raise a child with disabilities than it does a non-disabled child, and with costs increasing, it leaves families with no choice but turn to charities such as Newlife for help. In the past year Equipment Grant applications to Newlife from families have risen by a massive 60%, while total contacts to its Nurse Helpline from families and professionals seeking support has risen by 73%. Can you help even more families with regular giving?
Every day, Newlife is changing the lives of disabled and terminally ill children across the UK.
We offer a lifeline for families, providing life-changing and life-saving specialist equipment when and where it’s needed. Childhood cancers, birth defects, accidents, diseases and infections can all cause disability. They are affecting children and their families every day.
With your support, we can ensure more children get the best possible start in life and fulfil their potential.